One of the amazing things of the internet and technology is the democratization of information. I recently heard that it’s not that the world is getting worse, but that our information is getting better (ie. we hear about all the bad things happening in the world). That really resonated with me. Although, it annoys me when information that could be useful still isn’t making it to the right people at the right place and the right time. The point being that our information could still be better.
This tweet and infographic illustrated how this is true in the world of clinical trials and research:
— Mary (@marycray) August 19, 2016
How often do research studies not get done because they don’t have the right patients? Far too many. How many patients don’t get treatment from clinical trials that could save their lives because they don’t know about it? Far too many.
All of this happens because there’s a disconnect in the information that’s available. As someone who’s spent so much time in the EHR world, the question for me is should every clinical trial option be integrated into every EHR? Should we casually alert doctors to potential clinical trials that could benefit the patient? The EHR could already pre-qualify them in many ways so that the doctor was only seeing trials for which the patient likely could qualify for. How many more studies would get done and patients lives would be saved?
The lack of clinical trial information in the EHR is why I think the above infographic shows a disconnect between doctors presenting patients clinical trial options or not. Technology and EHRs are the way we can bridge the disconnect between patients expectations and reality. This is why I believe that EHR software can be an incredible foundation for innovation. We’re just sadly not there yet. We should be when it comes to clinical trials.