Patients Benefit From Access To EHR Data

Posted on April 8, 2013 I Written By

Anne Zieger is veteran healthcare consultant and analyst with 20 years of industry experience. Zieger formerly served as editor-in-chief of FierceHealthcare.com and her commentaries have appeared in dozens of international business publications, including Forbes, Business Week and Information Week. She has also contributed content to hundreds of healthcare and health IT organizations, including several Fortune 500 companies. Contact her at @ziegerhealth on Twitter or visit her site at Zieger Healthcare.

While doctors may not be completely comfortable with granting patients access to their EHR data, new evidence suggests that doing so produces significant benefits.  A new study published in the Journal of Medical Internet Research has concluded that granting patients such access “overwhelmingly” yields positive results, according to a report in FierceEMR.

To track the benefits of patient data access, researchers studied the My HealtheVet EHR pilot program, which gave access to the initial PHR established by VA. The pilot recruited 7,464 patients at nine VA facilities between 2000 and 2010.  An enrolled patient completing in-person identity proofing could access clinic notes, hospital discharge notes, problem lists, vital signs, medications, allergies, appointments, and laboratory and imaging test results. They could also as enter personal health data, access educational content and authorize others to access the PHR for them.

To evaluate the impact of the pilot, researchers from within and outside of the VA conducted focus group interviews at the Portland, Ore.-based VA Medical Center, which had 72 percent of pilot enrollees.

In discussing the program with patients, researchers found that they did have some negative experiences, such as reading uncomplimentary or offensive language in notes, concerns with inconsistencies in content and some technical problems with the EHR, FierceEMR reports. On the other hand, having access to their data improved patients’ communication with clinicians, coordination of care and follow-through on key items such as abnormal test results, the study found.

That being said, there are some repercussions to offering this access, researchers found. Though having access to notes and test results seems to empower patients, increase their  knowledge and improve self-care, it does have an impact on how physicians practice. “While shared records may or may not impact overall clinic workload, it is likely to change providers’ work, necessitating new types of skills to communicate and partner with patients,” the authors said.