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Patient Access to Health Information is a Right

Posted on April 14, 2017 I Written By

John Lynn is the Founder of the HealthcareScene.com blog network which currently consists of 10 blogs containing over 8000 articles with John having written over 4000 of the articles himself. These EMR and Healthcare IT related articles have been viewed over 16 million times. John also manages Healthcare IT Central and Healthcare IT Today, the leading career Health IT job board and blog. John is co-founder of InfluentialNetworks.com and Physia.com. John is highly involved in social media, and in addition to his blogs can also be found on Twitter: @techguy and @ehrandhit and LinkedIn.

I was browsing some old notes I’d taken to interesting resources and ideas. I came across some videos that ONC had created around the rights of patients when it comes to accessing health information.

Here’s a look at the first video:

The video is 3 minutes long and the information could have been shared in 30 seconds, but some of the points it shares are really good. For example, that it’s your right to be able to access your health information. Also, they make the point that you still have the right to get access to your health information even if you haven’t paid your bill.

It’s always amazing to me how many misconceptions there are out there when it comes to access to health information. We see HIPAA and other rules used as a reason to not provide patients their health information a lot and it’s often wrong.

The great thing is that over the 11 years I’ve been blogging, we’ve seen a real sea change in people’s perspectives on how and when you should have access to your patient record. That said, we still have a ways to go. Technology should make that record available to you whenever and wherever you want in near real time fashion. We see that in some organizations, but not enough.

These videos will never go viral, but they are a good information source for those patients who aren’t sure about their rights when it comes to access to their health information.

AHIMA Plans To Promote Blue Button

Posted on October 31, 2013 I Written By

Anne Zieger is veteran healthcare consultant and analyst with 20 years of industry experience. Zieger formerly served as editor-in-chief of FierceHealthcare.com and her commentaries have appeared in dozens of international business publications, including Forbes, Business Week and Information Week. She has also contributed content to hundreds of healthcare and health IT organizations, including several Fortune 500 companies. Contact her at @ziegerhealth on Twitter or visit her site at Zieger Healthcare.

This week, at its annual conference, AHIMA announced that it’s launching a drive to get its members and state organizations to push use of Blue Button technology.  The idea behind the push is to improve consumer access to personal health records, according to a report in iHealthBeat.

For those who aren’t familiar with it, the Blue Button dates to 2010, when the Department of Veterans Affairs launched the tool to help veterans access and share their personal health data in a standardized manner. Consumers who click on the Blue Button get human-readable personal health data in ASCII format.

Since its inception, both private organizations and federal agencies have implemented the Blue Button. According to ONCHIT, almost 500 healthcare organizations have joined the Blue Button Pledge Program, which encourages providers to make personal health records available to individuals and caregivers. Almost 80 million Americans can now access their health information through the program.

Now, AHIMA is encouraging wider expansion of Blue Button use. The association is urging members and state AHIMA chapters to inform employers, families, healthcare providers and other health professionals of the benefits of the Blue Button format, according to iHealthBeat.

This effort should be enhanced as providers move toward Blue Button+, the next generation of Blue Button efforts, which meets and builds on view, download and transmit requirements in Meaningful Use Stage 2.

Neither Blue Button nor Blue Button+ programs magically transform patient data into something everyone can see and use, but they’re steps in the right direction.

So, what’s the next step when Blue Button functionality becomes common?  Will it help patients manage their data, or is it unrealistic to expect them to download and transfer information? I think the jury’s still out on this one.

If nothing else, though, we can look too the Automated Blue Button Initiative, which will probably evolve away from ASCII into more universal standards like XML. I’m keeping my eye on #ABBI to see where that goes, for sure.